For National Family Caregivers Month, we review Merrill Lynch’s just-released 42-page Caregiving Study Report, entitled, The Journey of Caregiving: Honor, Responsibility and Financial Complexity. While we often think of caregiving as hands-on care, surprisingly, 98% of family caregivers surveyed provide emotional and social support. Only 64% report providing hands on physical care. Over 2,000 family [...]
It used to be that speaking was a fear greater than death. Today, the fear of getting Alzheimer’s is frequently cited among the aging population. While VOICES with Dementia aims to raise awareness of people with dementia who live productive and meaningful lives, the stigma remains. But not for long among those willing to take [...]
Caitlin Keating reports for People Magazine that these two newlyweds in the UK must now find a way to live dementia. Former globe trotter, Becky Barletta, who lived an active life now needs ’round the clock care. While her husband works, Becky needs caregivers to help look after her at her parents’ home. Despite symptoms [...]
While caring for a loved one with dementia, there are painful moments, which make us wonder if we can go on. For some, within that pain, lies an opportunity for laughter. This is how we survive. Caregiver humor is like that – bittersweet . She Is Much Nicer Than You Are Retired nurse-turned caregiver, Jeanne [...]
Caregivers like Joey Daley, father of three, take the initiative to follow the first tip of caregiving: Learn as much as you can about your loved one’s disease or illness to know what to expect. If that’s not enough, Joey took an even bigger step. He’s helping raise awareness of dementia and his mother’s Lewy [...]
UK-based CEO of ADI , Paola Barbarino says, “All the women affected by dementia are exposed to what has been termed a triple jeopardy. They are discriminated against as a result of their AGE, of their GENDER, and of their CONDITION.” “And then I looked up Dementia ” yields demeaning synonyms in the dictionary for [...]
Survey to Meet the Needs of Aging Population Los Angeles County (home of The Caregiver’s Voice) is conducting a survey to address the needs our diverse aging population. It includes questions about caregiving for people with dementia/Alzheimer’s. DEADLINE October 1, 2017 The survey is offered in 10 languages to meet the needs of Los Angeles’s [...]
Canadian-born Mary Beth Wighton, has been living with frontotemporal lobe dementia since 2012 when she was diagnosed at age 45. Two years later, she co-founded the Ontario Dementia Advisory Group (ODAG) with the mission of influencing governmental policies affecting the rights of people with dementia. “Since the formation of ODAG,” Mary Beth says, “members have [...]
Clinical Trials at Your Fingertips Clinical trials offer patients and caregivers the opportunity to be involved in their family’s medical care. Their participation in dementia research will help shape the future of medicine. Unfortunately, most people don’t know about clinical trials. For those that do, it’s difficult to find ones for which they qualify. Studies [...]
Karen Miller’s mother suffered a massive stroke at age fifty. “My mother’s stroke caused paralysis on her right side and took away her ability to speak. Also, she didn’t recognize her reflection in the mirror,” said Karen during a recent interview. “Mom became emotional and seemed to lose her ability to reason. It wasn’t until [...]
