The holidays are here...a time for sharing time with family, friends, loved ones, and creating fond memories. It's not just passing the turkey, stuffing and mashed potatoes, but sharing laughter, good conversation, and catching up with those you may have been somewhat out of touch with over the year... What happens, though, when you notice [...]
Your whole family is gathered for dinner during the holidays. Your sister-in-law is playing a video to entertain her two boys. Your spouse is having an animated discussion with your brother about holiday-light displays. A timer is buzzing in the kitchen. Your teenage daughter tells you that your mother, who lives with Alzheimer’s, is upset. [...]
What is the origin of these three English-language pet peeves? Could it be as a caregiver, I felt my time was not respected at the doctor’s office? Or are these due to English being my second language? As a first-generation American, we, like many immigrant families, spoke my parents’ native language. In my case, it [...]
Tremor is an involuntary, rhythmic muscle contraction leading to shaking movements in one or more parts of the body. It is a common movement disorder that most often affects the hands but can also occur in the arms, head, vocal cords, torso, and legs. Tremor may be intermittent (occurring at separate times, with breaks) or [...]
Linda Sivertsen presents the concept of Time Debt – something we caregivers experience, but likely didn’t have a name for, until now. When we were younger, time went by slowly; especially, when we’re in school. As we grew older, we likely had the same lament as our parents: The seasons pass too quickly. Sometimes, our [...]
It used to be that speaking was a fear greater than death. Today, the fear of getting Alzheimer’s is frequently cited among the aging population. While VOICES with Dementia aims to raise awareness of people with dementia who live productive and meaningful lives, the stigma remains. But not for long among those willing to take [...]
For National Family Caregivers Month, we review Merrill Lynch’s just-released 42-page Caregiving Study Report, entitled, The Journey of Caregiving: Honor, Responsibility and Financial Complexity. While we often think of caregiving as hands-on care, surprisingly, 98% of family caregivers surveyed provide emotional and social support. Only 64% report providing hands on physical care. Over 2,000 family [...]
Caregiver, ask for HELP before it’s too late. Oftentimes, caregiving families (including mine) dive into crisis mode before they know what they’re getting into. As they dive deeper and deeper, they lose sight of the shoreline. Soon, they come up and gasp for air. Looking around, there’s nothing but shark-filled waters. This is a risky [...]
Caitlin Keating reports for People Magazine that these two newlyweds in the UK must now find a way to live dementia. Former globe trotter, Becky Barletta, who lived an active life now needs ’round the clock care. While her husband works, Becky needs caregivers to help look after her at her parents’ home. Despite symptoms [...]
While caring for a loved one with dementia, there are painful moments, which make us wonder if we can go on. For some, within that pain, lies an opportunity for laughter. This is how we survive. Caregiver humor is like that – bittersweet . She Is Much Nicer Than You Are Retired nurse-turned caregiver, Jeanne [...]
Learning to Appreciate the Humorous Side of Caregiving Caregiving can be a challenging and stressful profession…but it also has it’s unexpectedly funny moments…when you can learn to appreciate them. Even in the most stressful situations, professionals in senior care say that laughing can even be helpful for the caregiver, as well as the patient. [...]
Your parents cared for you growing up, and you want to return the favor. That makes sense, you feel obligated, you feel a sense of responsibility, you feel that you “owe it to them”. Before you jump in with both feet, you need to consider all of the implications of this decision. This is a [...]
Nearly 20 years ago, I delivered a speech in honor of a former caregiver for her husband with Parkinson’s. I titled it, It’s NOT the Thought That Counts . Rodin The Thinker Photo by Crystal Borde The speech was inspired by regret. In 1994, while on a tight schedule in Milwaukee, I decided not to [...]
If we’re to survive, we caregivers must find something to laugh about. We’ll thrive and find joy each day, when we tap our well of caregiver humor. There’s much to laugh about in simple everyday interactions if we stop being so serious about ourselves. I used to visit, José, my caregiver friend Lisa’s husband. He [...]
At Death’s Door brings to life the end of life. Many of us remain unaware of the important issues families face near the end of life. What does a DNR/DNI entail? What are the leading conditions that lead to irreversible decline? Who has the legal right to make decisions regarding our healthcare? What options does [...]
Lyn Purser was born 46 years ago with intellectual disabilities. Born four months premature, she was placed on antibiotics shortly after birth. Five months later, she and her older brother left Italy for America with their parents. At age 14, she experienced a period of seizures that were inadequately controlled with medication. As a result, [...]
Each person I’ve interviewed for this Voices with Dementia column surprises me. Before Brian LeBlanc , who also lives with dementia, referred me to Nancy Nelson, he wrote, “We’re all snowflakes.” Well Snowflake Nancy made me smile until my face hurt. Nancy’s life changed when she forgot three words. Her doctor asked her to [...]
Despite how much we’ve learned, people with dementia are still stigmatized. Often, it’s due to not knowing enough about the disease. Other times, it’s people losing patience and jumping to conclusions. Here’s a four-minute video from Singapore that will inspire, slow us down and share a profound message of how life magically comes full circle. [...]
The Caregiver’s Voice Reviews Ann Vanino’s Chrysalis – Transformation from the Inside Out There are two periods in a caregiver’s life when a metamorphosis occurs – the moment we commit to caregiving and the period after. Chrysalis is the name given to the dramatic and total re-creation of a new life – the metamorphosis from [...]
FLORENCE -- Many of the older residents attending Thursday's 44th annual Senior Citizens Appreciation Day on Thursday at the Florence-Lauderdale Coliseum said they are worried about money, health care, prescription costs and national security. Nunery is 60, the "youngest" age to participate in the event, sponsored by the Northwest Alabama Council of Local Governments. Her [...]
